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Let's talk about Vertex Pharmaceuticals
A petition calling for global access to a range of life-saving, life-changing drugs called cystic fibrosis modulator therapies is...
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Feb 4, 20236 min read
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Is parent power the answer to making schools more covid safe?
Mitigations in school should be a no-brainer. As a society we traditionally protect children. Most parents would die to save their...
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Feb 8, 20224 min read
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88% of Cystic Fibrosis patients lack access to life-changing treatment
Findings come as drug manufacturer Vertex reports annual profits of $2.72 billion New research presented at the 2021 North American...
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Nov 5, 20212 min read
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I lost my baby son to cystic fibrosis. My daughter deserves Vertex's drugs to ensure a healthy life.
Hi, I'm Sindhuja, mother to my three-and-a-half-year old daughter Vishaka who has cystic fibrosis (CF). We live in India. She was...
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May 17, 20212 min read
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Trikafta saved my life - But I have 'survivor's guilt' because others don't have the same chance
My name is Stephanie Stavros and I am a 37-year-old patient living with cystic fibrosis (CF). Without Trikafta, 2020 would have looked...
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May 12, 20216 min read
1,257 views
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Janco our CF Warrior needs life-saving drug Trikafta to ensure a healthier future
I am Tanya, the mom of a CF warrior who is turning four this year. Janco was diagnosed at the age of two. There is no heel prick test...
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May 6, 20213 min read
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Ana faces stressful legal battle for access to CFTR modulator therapy Kalydeco
Ana Claudia Petri, who lives in Curitiba, Brazil is fighting for her life at the age of just 40 years old. She has been forced to go to...
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May 3, 20213 min read
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Trikafta: "It is inhumane to price a life- changing drug so high, that it remains out of reach"
Guest blog by Vaishnavi, a young woman who has had her life turned upside down by a late cystic fibrosis diagnosis and lack of the...
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Apr 29, 20213 min read
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Join the fight for global access to cystic fibrosis drugs
Where you live should not determine whether you live Every time I see a story or a post about someone who is living with cystic fibrosis...
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Apr 26, 20213 min read
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